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 Post subject: not being able to move feeling
PostPosted: Sun Sep 14, 2008 5:18 pm 
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Does anyone know what causes this feeling? Anyone ever ask their LLMD? Or neurologist. I hate this feeling, it's like I want to reach for something but it like my brain doesnt connect to my arm. I have to keep telling myself, pick it up. Sometimes its just in a limb, but a lot of times its my whole body. I want to get up out of bed, or up out of the shower and I can just sit or lay there. It takes me forever to get up. Its so hard to explain. Anyone else?

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 Post subject: Re: not being able to move feeling
PostPosted: Sun Sep 14, 2008 5:57 pm 
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I don't have an answer for you but just wanted to say I'm sorry you are having this issue.

Lyme is such a strange animal.

I will pray you feel better soon.

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 Post subject: Re: not being able to move feeling
PostPosted: Sun Sep 14, 2008 7:06 pm 
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Lisa,
You have sleep paralysis like Danny, right? It kind of reminds me of that. You want to do it, but can't.

I think it is likely a 'neurological glitch' (for lack of a better word) of Lyme.

Oh, how I wish you had a really good LLMD.

Did you ever get a chance to do Bicillin IM shots?

Sound like you need something to penetrate the CNS - I was just reading Olive Leaf Extract penetrates the CNS ..I know I keep talking about this supplement.

What about that and Cats Claw, garlic, etc... can you tolerate any of that?

I know you said the "penicillin's" are all you can tolerate. As far as abx - me too and Biaxin - that is it.

I also think Bicillin would be good for this since it penetrates well.

(check your p/m's)

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 Post subject: Re: not being able to move feeling
PostPosted: Mon Sep 15, 2008 10:01 am 
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Laine had this symptom Lisa, last summer, but it thankfully didn't last long and has not reoccured.

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 Post subject: Re: not being able to move feeling
PostPosted: Mon Sep 15, 2008 10:38 am 
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Oh God Lisa, I have this all the time. Danny is this like your sleep paralysis? It's so like you describe, like something not fireing right. the signal not getting to the body part. It mostly happens to me in bed. Sometimes waking out of a dream, or sometimes I can't tell if it's real or a dream, very confusing.
I'm sure it's neurolyme stuff. I was watching a mystery dx show and they were talking about muscle twitching, and I get that alot, involentary body movements, and the doc was saying neurological, so I'm thinking this is along the same lines. They said she had some hereditary disease, but of course, I thought lyme, lol

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"something good WILL happen to me today"

(Isaiah 53:5 NKJV) But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, And by His stripes we are healed.


Any advice given by me, is just that, advice. I am not a medical doctor, and I suggest you talk to your doctor about any concerns.


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 Post subject: Re: not being able to move feeling
PostPosted: Tue Sep 16, 2008 3:10 pm 
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I watch Mystery Diagnosis too. The other night they had one where a boy kept getting shocks. I was amazed, theres other disease that do that too? His was from radiation poisoning. But in the morning I have this feeling in my arms and legs for about two hours. Little shocks and sparks inside. I dont know how else to explain.

The sleep paralysis thing is different. I have had that too. This lasts a day. If I wake up with it I have it for the day. But your right when you say its like your brain isnt connecting to my limbs. It s like everything weighs 100 lbs. Like my arms are full of water.

Im sure its something neuro. Almost 90% of my symptoms are neuro. Its not mostly pain I have, its mostly numbness, tingling, vibrations, and a bunch of just weird feelings.

Thank you for the prayers too, :wiggle: !

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 Post subject: Re: not being able to move feeling
PostPosted: Tue Sep 16, 2008 3:12 pm 
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Oh and I forgot, Dana, I have taken allicidin (garlic) but it makes me so nauseous. But I still add it to things. It in drop form. And I do take cats claw, which has helped me more than anything I have taken. I take that in drops, and in capsule form.

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 Post subject: Re: not being able to move feeling
PostPosted: Tue Sep 16, 2008 4:00 pm 
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Yes Lisa, I too mostly struggle with the neuro symptoms. The sparky feelings. And the disconnectedness. Mine never lasted all day. The burning just under my skin. Like all the little nerve hairs where standing up screaming!!!! But I'm better again. See my post. Gina


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 Post subject: Re: not being able to move feeling
PostPosted: Tue Sep 16, 2008 7:55 pm 
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Lisa,
I can't handle garlic myself, not even garlic bread.

Everytime I watch Mystery Diagnosis, they all sound like lyme to me and probably are!

If anyone can relate to shocks and sparks - that would be me! It sounds Bartonella related OR it can be viral related too.

You know many of my supposid "bart" symptoms vanished on Bicillin...classic bart stuff and bicillin is suppose to only kill Lyme.

Olive Leaf Extract - kills everything, including viruses, which I know you were concerned about...I do mean everything too! I am trying to get up to 2000mg per day of a good "pure" one. Diana recommends one in her post under my post "Did I hit the homeo jackpot".

This supplement is truly amazing - have you ever done it? You have to try it! Maybe I should get on Cats Claw too...I am trying to work my way off abx and onto natural stuff. Abx are just gagging me, I mean I can't stand the smell..yes there is smell..have you ever smelled amoxi or especially keflex? Oh, yuck! I want off.

I am going to get Danny in on this thread - I wonder if he has experienced this.

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Join us on Facebook and connect with other Lyme patients: http://www.facebook.com/home.php?sk=gro ... 2524317756
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Always check w/your MD regarding advice given by me or any member at this forum & any articles & info. at this site. Site disclaimer: viewtopic.php?f=6&t=16


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 Post subject: Re: not being able to move feeling
PostPosted: Tue Sep 16, 2008 8:31 pm 
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Can't say that I've experienced it but it's one of the things that occurs with sleep paralysis. When in paralysis I can actively feel all my limbs but only 1 (2 if im lucky) will operate despite my brain telling them to move.

I'll pray for you Lisa and I know it'll go away soon :hug:

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