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 Post subject: You won't believe it...I have had lesions for 10 yrs!
PostPosted: Tue Aug 12, 2008 11:50 am 
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I had an MRI back in '99, I had seen a neurologist for migraines and vertigo that had started - I did NOT have pain.

I remember specifically calling to get the MRI results from the neurologist, his words, "Everything is fine".

Life went on.

Today, I decdied to get a copy of that MRI done in '99 and it shows LESIONS!!!!!!

Can you believe it?

This is like putting the pieces of a puzzle together.

Like Danny said, "So we know you have had lyme for nearly 10 years."

I guess so...I didn't have severe pain like this then at all.

Can you imagine how stunned I was to see this old MRI report?

Had I only known about Lyme - everything today would be different!

Always ask for a copy of your reports...I learned my lesson.

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 Post subject: Re: You won't believe it...I have had lesions for 10 yrs!
PostPosted: Tue Aug 12, 2008 4:06 pm 
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This does not surprise me! Stupid Drs covering everything up. I bet if we all collected all of our 'normal' MRIs that none of them will be normal!

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 Post subject: Re: You won't believe it...I have had lesions for 10 yrs!
PostPosted: Tue Aug 12, 2008 5:11 pm 
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WOW. We never stop learning about ourselves our about this disease, do we??

The good news is that you functioned well with the lesions for a long time.

I've had Lyme for maybe 30 years but didn't get real ill until about 7 or 8 years ago.


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 Post subject: h
PostPosted: Tue Aug 12, 2008 6:02 pm 
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That is true Lisa!! LOL!

Molly -- apparently I have had it at least 9 years, I think likely 13+ years.

Amazingly today I actually got a hold of the Md (radiologist) who read the films and was able to talk to him! Nice man!

He said he "...compared my '99 MRI w/ last weeks and there are no changes what so ever since '99, nothing is worse it is the exact same and then said that he see's this often, most peole don't know they even have them. He said they are small, you have no masses or tumors, if you were a family member I'd tell you not to think twice about this. Also, these results can be associated with anything from migraines (which I get) and (are you ready - he said...) to Lyme Disease". Then I told him I have Lyme Disease and he added, "Even if you have Lyme this may not be related to it or anything else at all, they are non-specific and I see them all the time".

Well it made me think if he sees them all the time, he is likely seeing a lot of Lyme patients MRI's!

Can you believe he said Lyme Disease? I didn't know mainstream Md's knew those 2 words! I about died....I knew then I have carried LD for at least 9 years and wasn't even truly symptomatic until '06.

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 Post subject: Re: You won't believe it...I have had lesions for 10 yrs!
PostPosted: Wed Aug 13, 2008 5:46 am 
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i can't believe he even brought up LD! That's great, but to say (our regular docs) that things are fine, that's so not true. If there's something there, that is NOT supposed to be, then something is going on. Like you said, he' s likely seeing a LOT of lyme patients. Headaches are a symptom, and so people probably have MRI's for headache issues, their docs see this on the report, but because it doesn't say MS, it's nothing. oooohhhh, how frustrating.

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(Isaiah 53:5 NKJV) But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, And by His stripes we are healed.


Any advice given by me, is just that, advice. I am not a medical doctor, and I suggest you talk to your doctor about any concerns.


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 Post subject: Re: You won't believe it...I have had lesions for 10 yrs!
PostPosted: Thu Aug 14, 2008 5:07 pm 
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So when are these docs going to put two and two together. They say these are fine and not to worry? Well then why are all these people with these lesions, that are fine, getting MRIs in the first place? Because THEY ARE NOT FINE! My goodness when will they open their eyes.

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 Post subject: Re: You won't believe it...I have had lesions for 10 yrs!
PostPosted: Thu Aug 14, 2008 6:07 pm 
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I agree - if it is common to see lesions on many MRI reports....and they are reporting it's "nothing" ...it's lyme, absolutely!
And WHY??? Too weird.

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