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 Post subject: BioFilms-Bb;clinical implications for Chronic Borreliosis
PostPosted: Thu Jul 03, 2008 2:33 pm 
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What a blessing Dr. MacD is to the Lyme community. He is featured in the documentary UnderOurSkin with the remarkable results linking AlzheimerPatients to Mis-diagnosedLyme.

This is his online PowerPoint program revealing the results of his Biofilm Study resulting in clinical affirmation of persistent Bb. This study which is now published and is partially funded by the research dollars from the LymeDiseaseAssociation and TurntheCornerFoundation.

http://www.molecularalzheimer.org/files/Biofilm_New_Haven_ppt_Read-Only_.pdf

This is credible science that merits a voice at the revised infectuous disease board roundtable when the new panel convenes to study all of the research surrounding Borreliosis.

This is the tide turning. I am so grateful that the Lord is on the move.

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He who dwells in the shelter of the Most High will rest in the shadow of the Almighty. Wait for the LORD; be strong and take heart and wait for the LORD. Fear not, for I have redeemed you; I have called you by name; you are mine... When you pass through the waters, I will be with you; the waves will not overcome you...For I am the LORD, your God, the Holy One of Israel, your Savior www.stylebyheatherrose.com


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 Post subject: Re: BioFilms-Bb;clinical implications for Chronic Borreliosis
PostPosted: Thu Jul 03, 2008 8:23 pm 
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Oh yes...I found this recently. After the video I had to look up his studies...he is an amazing one man army. This should have already changed everything about Lyme. Does the IDSA even acknowledge this do you know?

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 Post subject: Re: BioFilms-Bb;clinical implications for Chronic Borreliosis
PostPosted: Fri Jul 04, 2008 6:10 am 
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Not that I am aware of; esp. given the comments made by the ID rep on GMA this morning.

_________________
He who dwells in the shelter of the Most High will rest in the shadow of the Almighty. Wait for the LORD; be strong and take heart and wait for the LORD. Fear not, for I have redeemed you; I have called you by name; you are mine... When you pass through the waters, I will be with you; the waves will not overcome you...For I am the LORD, your God, the Holy One of Israel, your Savior www.stylebyheatherrose.com


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 Post subject: Re: BioFilms-Bb;clinical implications for Chronic Borreliosis
PostPosted: Fri Jul 04, 2008 11:10 am 
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Did they have the segment on LD on GMA finally? I missed it...can you tell us about it?

Here is a pubmed abstract regarding the resitance of bio films: http://www.ncbi.nlm.nih.gov/pubmed/1832 ... d_RVDocSum

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 Post subject: Re: BioFilms-Bb;clinical implications for Chronic Borreliosis
PostPosted: Fri Jul 04, 2008 9:56 pm 
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Here is the link for the written story: http://abcnews.go.com/GMA/story?id=5300584&page=1

http://abcnews.go.com/Video/playerIndex?id=5309680

I am grateful they did the story, mainly b/c they at least took that first step and included interviews and quotes from the ILAD/LLMD/patient community. It did fall short in areas and the ID vs. ILADs doc portions of the interview merited much more indepth response in order to truly educate and/or bring out the scientific facts.

Sadly, the ID response was for me, rhetoric. Its wonderful if there is a serious concern about long term treatment and it's harmful effects; however, I find it contraditory to keep hearing the same thing from this side of the table w/o any hope of answers. They fully know there is ongoing suffering for Lyme patients who are not diagnosed immediately and particularly when it is a late diagnosis, yet, they continue to state that there is no science validating persistant infection. This would sway me if I were not aware of the additional science that clearly shows persistent Borrelia infection. I find it arrogant in light of the AG investigation results and the fact that they did not offer to reconsider the guidelines; it was imposed on them b/c of their violiation of the anti-trust laws. This is not clearly understood nor conveyed in this GMA interview, sadly.

The ID view has askewed the view of the truth of science to meet their criteria and influenced thousands of doctors. Simply not telling the truth and somehow hoping that the credibility of their once prestigious society sways people to believe only one thing, esp. when they do not have the personal experience to know otherwise. This is wrong.

Additionally, the GMA doctor who added comments at the end said some really good and factual things but sadly at the end added a statement that for me, blew her credibility...She acknowledged the seriousness of the disease and its potential complications but said that at the first sign 70-80% of people will have the bulls eye rash. This is not true. This number is dependent on an immune response to the Lyme and is much less in percentage in reality. She speaks to the late stage acknowledging that is can be a serious problem. That was good. She acknowledged that it is the most common insect infection now in the US. THEN, my heart went still when she said that early treatment only consisted of a single dose of ABX and that could get rid of it. "Beyond that time you need to take 2 weeks and as much as a month"....so there was confusion in this comment and I am wondering where in the world this comes from? One or two pills of Doxy at an early sign of Lyme? This is so misleading to the listening audience who if infected and trusting in this to guide them in their care, will be harmed in the end. Her closing statement regarding prevention was good. For the length of the segment, it would have been good to hear more from our Lyme specialist community.

GMA recognized that difficulty of the disease and for that I am grateful. It is a start.

http://abcnews.go.com/Video/playerIndex?id=5309680 - I understand that this is the video interview.

On the written story, be sure to read the written comments (about 30 or so); they are well spoken and actually present a more balanced view to the story. They tell real people stories with real living experiences of loss and great suffering.

When you watch it beware of some of the information that is mis-represented. ie: 20,000 people get the disease each year (w/o the additional knowledge that the CDC acknowledges that this is an underreported number by 10 fold at least).....

You know, what I find most disturbing is the fact that this debate has become about long term antibiotics and not about the suffering of thousands of patients who need a standard of care that they can trust, both from their doctor and for the sake of their loved one or self. ID says they want to help; yet, they have now paid lobbyists to stop the emergent need for HR741 to be passed very effectively. Why? Why would the IDSA want to stop a bill that clearly merits the millions that would be allocated for research and development - properly and to include all science in the process. why? This is simply immoral and no one in authority is questioning this behavior. Dollars are driving the decision, not the obvious patient need. why?

_________________
He who dwells in the shelter of the Most High will rest in the shadow of the Almighty. Wait for the LORD; be strong and take heart and wait for the LORD. Fear not, for I have redeemed you; I have called you by name; you are mine... When you pass through the waters, I will be with you; the waves will not overcome you...For I am the LORD, your God, the Holy One of Israel, your Savior www.stylebyheatherrose.com


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