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 Post subject: Mainstream Nurse divulges LD "secret" to me
PostPosted: Fri Jun 27, 2008 3:10 pm 
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Well, I was at my husband's mainstream Md's office today. I have told you about him in past months, a recap - he is very open to LD and when he heard I had it months ago, he wanted to know where I lived, although that showed illiteracy - because I am sure that ticks stay in my city and don't cross city lines! (Many cities converge around Sacramento) I told him and he said he would have quite a few patients he would re-evaluate for LD now that he knew it existed here. He is new to the area and originally from another country, 3rd world, where they see it all.

I "educate" him every month- although I think he'd rather I shut up, I don't.

As I was leaving the nurse whispered to me, "I am not suppose to say this...but we have many Lyme disease patients".

I said, "WHY are you not allowed to say that?" She quickly replied "HIPPA laws" - BALONEY!!! Hipaa protects a specific patients records - for instance they can't tell me "Joan Smith" has Lyme disease.

I really thought that was weird..."I am not suppose to say this...." I said, "Scream it from the rooftops, alert the news!" She thought I was overly dramatic I'm sure....but WHAT IS THIS? Come on!

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 Post subject: Re: Mainstream Nurse divulges LD "secret" to me
PostPosted: Sat Jun 28, 2008 4:53 am 
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interesting! I wonder if this has come about since he re evaluated them or if he's always had lots of LD patients? Either way, there's our Dana out there spreading the word!

Do you think she really thought HIPPA laws?

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"something good WILL happen to me today"

(Isaiah 53:5 NKJV) But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, And by His stripes we are healed.


Any advice given by me, is just that, advice. I am not a medical doctor, and I suggest you talk to your doctor about any concerns.


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 Post subject: Re: Mainstream Nurse divulges LD "secret" to me
PostPosted: Sat Jun 28, 2008 10:37 am 
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I think she has been "trained" to say HIPPA when it comes to LD patients - seriously. It would be like going into a GI doctor's office and the nurse saying, "I am not suppose to tell you, but we treat many patients with stomach issues"...ridiculous! HIPPA doesn't cover a general statement like that about a "group", it covers a specific patients right to privacy. Something very fishy about that, really. LD patients are reported to local health departments, we have received calls about us from them. Did the health dept. feed her a line and tell her "You are not allowed to divulge this now due to HIPPA laws"...I don't trust any governmental entity...deceitful!

I have wondered the same thing as you, if now he had LD patients because he re-evaluated and I don't know if he is treating them with abx or just symptoms, like pain meds, etc.

The secretary who works for him is on an extended leave, she and I know each other pretty well...I am SURE she would have told me they had "many" LD patients, I mean I KNOW she would have, we have known each other for years. She even suspects LD in herself after my ordeal with it. She is not quite convinced about herself, but does wonder and totally believes in Chronic lyme. I know she would have told me they had LD patients.

She (the secretary) once had me "consult" w/an MS patient when the doctor was in with another patient. She ran for me when I came through the door and said "I need you in room 5 NOW -I was thinking, what? - she quickly explained to me about the the woman w/MS and wanted me to tell her about Lyme. I did as fast as I could. I pray that woman got tested for LD, our symptoms were nearly identical and I am sure the continued treatments of IV Corticosteroids was making her worse, she was very grateful and open to the info, so I hope she has studied about LD and has been tested. I will never know, unless I run into her again.

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 Post subject: Re: Mainstream Nurse divulges LD "secret" to me
PostPosted: Sun Jun 29, 2008 5:06 am 
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I remember you telling me about the lady with MS. I sure hope she got tested. I'm sure you did, but you explained the lousy testing behind all this crap, and that even a negative test can be positive? Not sure how much time you had with her. Hippa, we'll add that to our joke about the fibro commercial :)

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"something good WILL happen to me today"

(Isaiah 53:5 NKJV) But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, And by His stripes we are healed.


Any advice given by me, is just that, advice. I am not a medical doctor, and I suggest you talk to your doctor about any concerns.


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 Post subject: Re: Mainstream Nurse divulges LD "secret" to me
PostPosted: Sun Jun 29, 2008 1:14 pm 
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Yeah, I only had minutes to explain years of study...I did the best I could...she was thankful and seemed very open to the idea. I know I did a lot of jumping around and probably to an "illiterate" person I sounded nuts...but I wrote down a few websites for her to study, so hopefully she is more clear on it now.

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Join us on Facebook and connect with other Lyme patients: http://www.facebook.com/home.php?sk=gro ... 2524317756
Follow us on Twitter https://twitter.com/TruthaboutLD
Truth About Lyme Disease Home Page: http://www.truthaboutlymedisease.com
Truth About Lyme Disease Video : http://www.youtube.com/watch?v=ZGQINypsf7g

Always check w/your MD regarding advice given by me or any member at this forum & any articles & info. at this site. Site disclaimer: viewtopic.php?f=6&t=16


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