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 Post subject: Girl in desperate need of help, this is life or death
PostPosted: Fri May 02, 2008 5:42 pm 
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Joined: Sun Feb 17, 2008 9:42 pm
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I just viewed this on Youtube...please watch this, if anyone reading this knows of a way to help this girl, please contact them.

It starts with the way her life use to be...then gets hideous...I mean unbelievable.

This is really UNREAL... this girl needs help now...it is very serious. I wish an LLMd would offer to help or perhaps the LDA to pay for IV..this is life or death.

I am going to forward to my LLMD.

A LLMD needs to step forward and help this girl probono, free all health expenses covered, or some influential people, I am emailing all that could possibly help in some way.

I believe whomever made the video gave an incorrect email address savemarie@yahoomail.com at the END of the video it is not a deliverable address, savemarie@yahoo.com which is at the top in the title of the video is the correct email. I emailed them to notify them of what advice and help I know of that can be offered. I also invited them here, they are Christians for any support we can offer.

If you think your LLMD's could help in someway, or you, forward the link, if you have any ideas let them know...(do not copy link from here, it is shortened, copy it from the video/site itself):

http://www.youtube.com/watch?v=qpnyMIPglLI

Please let me know your thoughts, It is sad I warn you, I cried and I am praying for her.

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 Post subject: Re: Girl in desperate need of help, this is life or death
PostPosted: Sat May 03, 2008 5:01 am 
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I don't even know what to say. There are no words. I think we MUST email this link to any docs we can, I am sure SOMEONE can treat this girl for free and get her well again. What a beautiful young woman she is, and so sickening how she suffers. I feel lucky right now after watching that. This disease is something else.

thank you for sharing

let's find her some help, and hopefully she'll come here and we can provide support for her and her family.

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"something good WILL happen to me today"

(Isaiah 53:5 NKJV) But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, And by His stripes we are healed.


Any advice given by me, is just that, advice. I am not a medical doctor, and I suggest you talk to your doctor about any concerns.


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 Post subject: Re: Girl in desperate need of help, this is life or death
PostPosted: Sun May 04, 2008 9:48 am 
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Heartbreaking...too close to home for me.

I've read that Canada adopted the IDSA guidelines, so
now that the IDSA's corruption has been uncovered officially, this girl may be able to get more help from the hospitals. This is what we are praying for for Gracie as well. Until then this girl could at least do an alternative protocol. There are others in western Canada that Gracie and I know that recently have had to switch to Zhang's because their Canadian LLMD was forced into retirement. At least it is an option.
This reminds me of Gracie's story. Treatment was ripped away from her as well and she became totally debilitated because of it.

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 Post subject: Re: Girl in desperate need of help, this is life or death
PostPosted: Sun May 04, 2008 11:29 am 
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How sad...I never knew that about Gracie, wow, I am sooooo sorry. It makes me sick that this disease can be ignored with patients in this condiiton! Really, what is going on???

Having LD is impossible for me so painful, but having LD AND watching your kid live it is absolutely the hardest thing I have ever lived through, it has made me worse than ever. Danny is neuro like me (not as much pain as "brain") ...I wish they'd just go straight to IV, when he was 7 he did IV and recovered very quickly. Now LLMD's wait I guess until you are this bad off..I don't understand the whole years and years of orals. Why not IV right off the bat and then orals as follow up? Why do LLMD's wait? I have seen first hand my child dying and IV bring him back....now we are playing the "oral abx" game w/him...I think it is ridiculous when I know IV would end this quickly. Likely would help me too, but no IV.

You are right about alternative protocols AND I was wondering after I posted ...is she on oral abx? When hospitalized did she have IV? They mention a Seattl Md...why haven't they gotten her a PICC line and done abx at home? Many questions.

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Join us on Facebook and connect with other Lyme patients: http://www.facebook.com/home.php?sk=gro ... 2524317756
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Truth About Lyme Disease Video : http://www.youtube.com/watch?v=ZGQINypsf7g

Always check w/your MD regarding advice given by me or any member at this forum & any articles & info. at this site. Site disclaimer: viewtopic.php?f=6&t=16


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