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 Post subject: low lab work- should i be alarmed?? please help!
PostPosted: Mon Jun 15, 2009 8:08 pm 
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hello all!

i need advice on blood work - any help appreciated!

started a iv picc line in march (rochepin) and took 7 wks and had to stop - due to low blood counts WBC, RBC, and H&H) all very low

still after 4 weeks off the rocephin, the blood work is low -


hurting all over - knees, arms, legs headaches, stiff in the mornings after waking, going numb every night - hand and legs, BRAIN FOG!, really feeling so much worse and am not taking the meds???

so fatigued - tired - cannot sleep,


any advice?? anyone?


any experience on how to raise blood work to normal levels? or get my body to absorb iron and other minerals...............

with such low white and red blood counts - is my bone marrow being affected??


just started an iron supplement........ and transvere factor..............


thanks!


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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Mon Jun 15, 2009 11:43 pm 
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Hi Jen!
Good to "see" you! I was thinking about you and wondering how you have been.

I, unfortunately can't answer what may be going on. Have you had an opportunity to talk to your LLMD?

All I know about low WBC is that there is an infection present - that we know though. I can't guess on the others.

Hopefully someone can help here, if not please let us know what your LLMd has to say because I'd like to know myself.

I have a link for blood tests and their meaning: viewtopic.php?f=10&t=31

Here is a link about a WBC diet - probiotics, I know are important, a good strong one. Google VSL#3 - pharmacuetical grade - they come in powder and capsules. Helped me recently. Have you been on a probiotic all this time?

Check out this link for the WBC boosting diet: http://parenting.ivillage.com/gs/gsheal ... q2,00.html

I am only guessing but the symptoms could be caused because you stopped Rocephin, like a relapse. Sometimes a relapse is worse than the original "syptom-wise" for some reason. Were you doing oral abx like a cyst buster and treating co-infecitons concurrently?

Also, for some reason this comes to mind about absorpton - bile. Is your gallbladder ok? Were you taking Actigall when on IV to protect your gallbladder? Bile is needed for absorption, I wonder if you might need some gallbladder tests - I'd definitely ask my LLMd about it.

Keep us updated.

I will be praying for you,
Love - Dana

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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Tue Jun 16, 2009 7:08 am 
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Jen,
Has your doctor checked your iron and ferritin levels to see if that is affecting RBC H&H? Also some medications or co-infections I have heard can effect RBC and WBC, but I am not sure.


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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Tue Jun 16, 2009 12:15 pm 
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Hi Jen,

I am so sorry for the increase in illness. I am still on IV rocephin, (six months) and actually had low red blood cell count when I began. I wonder if it actually is the rocephin that is causing the issues? Also, what was your dose? I am actually taking it really slow with this med; maybe you could reduce your doseage, or perhaps pulse.

I would advise a "whole foods" iron tablet; mine is called "blood builder". It is not made from chemicals, but from food. Easy to digest and not at all hard on the tummy. I don't know; maybe it would help in your absorbtion. And as Dana says, Actigall, Actigall, Actigall. I'll pray for you. Love, Amy


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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Tue Jun 16, 2009 7:23 pm 
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thanks for the input!

i started liquid chlorophyll - hasnt seemed to do much

i started taking "juice plus" (whole fruits and veggie supp)

started taking transfer factor - colostrum

prenatal - not pregnant - but lots of good vit source

local doc (not lyme doc) put me on prescription iron pills

Amyloo..... i was on 1 gram of rocephin for 1 week then started 2grams for the next 2 weeks and then began pulsing M-F - off on weekends...............- then just M-W -F for the last week..................but i wasnt on Flagyl - are you??? i was givven URSO as a gallbladder/liver support - and i was also taking doxy and mepron..............along with all the herbs...........cats claw etc....... got to be tooo much! was feeling even worse...

i dont really know if i was on the right combo!?

now i just need to get my levels back up - feel so so sluggish! - no energy at all!

should i ask for any specific blood work to be drawn????????
what is the cd-57 and cd-4 - is this necessary?
anything else?

thanks to all!


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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Tue Jun 16, 2009 9:10 pm 
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Jen,
You could ask for a cd57 (only at Labcorp though). It is an immune system marker - in most of us w/chronic lyme it is below normal, so it may not mean much. More about it here: viewtopic.php?f=10&t=10

Have not heard of CD4. Do you mean CA3 and CA4 - inflammation markers tests?

It does sound like you were on A LOT. That can burden the organs. Die off overload could be involved. Are you still doing infrared sauna's? That would help with detox.

Any ideas why he chose Doxy/Mepron -usually it is a macrolide like Zith/Mepron or Biaxin/Mepron - for babs, right?

Since I have considered IV, I have talked to quite a few people I know who are on IV or did IV. There is a definite "art" to IV in order to get someone well and not relapse. Example, I have a friend who is now seeing an (possibly the best) LLMd - she, like me, has been on orals for 3 years until she saw this doctor. Anyway, he started her on IV. His protocol gets many well...he has her pulsing 2 g Rocephin M, W, F - she pulses orals for Bart/Erhlichia (he hits all co-infections whether you are Igenex + or not) and he has her doing Flagyl ONE day per month - she said that even one day is hideous. THEN the after 3 weeks of this - the 4th week no abx at all. Did you do lactated ringers too? My friend said they help her feel better (also part of his protocol).

Anyway, he has you do this every month - when you finally can take your abx "vacation" (that 4th week off) and not relapse he knows you are getting close to end of treatment. He told her that giving her Rocephin, she would likely feel better in a few months but she would never be well and that would be proven when she stopped, she would relapse without a doubt, cystic form would turn to free form in the blood. He said Rocephin pushes lyme into cyst form almost immediately, that is why a cyst buster is part of his protocol. I love his pulsing regimen and then one day of Flagyl per month. It sounds do-able and when you are finished w/IV you will not likely relapse because all 3 forms of LD and all co's are hit.

When your tests return to normal are you starting IV again? Ask about a cyst buster, after hearing this particular doctors protocol, I know he knows best and it doesn't have to be daily, which makes it so great.

One more thing, Burrascano's guidelines say at least 3 days off per week when on IV - he suggests 4 on 3 off he says Actigall is a must.

Please keep us updated - we've missed ya!

Dana

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Join us on Facebook and connect with other Lyme patients: http://www.facebook.com/home.php?sk=gro ... 2524317756
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Always check w/your MD regarding advice given by me or any member at this forum & any articles & info. at this site. Site disclaimer: viewtopic.php?f=6&t=16


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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Wed Jun 17, 2009 1:22 pm 
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thanks so much! for all the help! you guys are so supportive

Dana - i am going to pm you about some questions!


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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Sat Jun 20, 2009 6:50 am 
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What is lactated ringers?

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Krissy


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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Sat Jun 20, 2009 1:45 pm 
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Krissy,
Lactated Ringer’s, is a sterile, nonpyrogenic solution containing isotonic concentrations of electrolytes in water for injection. It is administered by intravenous infusion for parenteral replacement of extracellular losses of fluid and electrolytes.

More here: http://www.drugs.com/pro/lactated-ringers.html

_________________
~~~~~~~~~~~~~~~~~~~~~~
Join us on Facebook and connect with other Lyme patients: http://www.facebook.com/home.php?sk=gro ... 2524317756
Follow us on Twitter https://twitter.com/TruthaboutLD
Truth About Lyme Disease Home Page: http://www.truthaboutlymedisease.com
Truth About Lyme Disease Video : http://www.youtube.com/watch?v=ZGQINypsf7g

Always check w/your MD regarding advice given by me or any member at this forum & any articles & info. at this site. Site disclaimer: viewtopic.php?f=6&t=16


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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Sun Jun 21, 2009 7:32 am 
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Lyme is really a hard road to travel because i see so many Patients react in different ways to abx and iv's abx. I think the treatments cause the spirochetes to die off and causes some of the miserable feeling but the blood counts could be from the treatments itself. that's why we really need LLMD's in every town that know how to tweak our meds and find the right combo for each Patient.

I hear that some can't take Flagyl and others swear by it but everyone acts different because our bodies are different. The strains of Lyme may be different also with co infections which even make the treatments even worse, and the immune system is weakened to a point where we are so over run with symptoms, we feel so sickly like we just want to die and get it over with. (herxing really sucks)

Getting the immune system back in shape is the hardest part of recovery and i will keep you in my prayers that your LLMD will be able make the necessary adjustments for you. You can also look at Dr. B's guidelines and see if He says anything about low WBC, RBC but hang in there we are all hurting with this disease.

Peace johnnylight


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 Post subject: Re: low lab work- should i be alarmed?? please help!
PostPosted: Fri Jun 26, 2009 12:55 pm 
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thank you all so much for caring and the advice! means so much to have a support group that knows basicly - all that one another is going through!

you all are in my thoughts and prayers also!


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