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 Post subject: Does anyone know @CD57. Mine is 16 PLEASE HELP
PostPosted: Sat May 23, 2009 12:48 pm 
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Image I am so new. I have had 1 migraine for now 7 years.The pain feels like knifes. 50 docs. Thousands of shots in my head. The list of hospitalizionswho knows @ 35. I have been around the world for help.
Waiting on iggenex...Blood was given on tue or wed. Iggenex got it on mon is any thing going to be accurate?
I KNOW GOD is bigger but in your oponion whats your take. PLEASE HELP


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 Post subject: Re: Does anyone know @CD57. Mine is 16 PLEASE HELP
PostPosted: Sat May 23, 2009 3:38 pm 
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Hi jjnewbie,

Image

I am sorry about your suffering. In the world of Lyme Disease, it can take months or years to figure out what is going on.

Igenex is very reliable, much more reliable than any standard lab. But Lyme (no matter of the test results) should be based on symptoms, a clinical diagnosis.

Do you have an LLMD (lyme literate Md)? Also, were you tested for co-infections, not just Lyme Disease?

CD57 tests show a "part" of our immune system that are believed to only be suppressed by tick borne diseases. They can be used as screening tests and by your low number, I'd say most LLMd's would say you have Lyme Disease for certain.

I am going to give you some links to study below. Also, please "favorite" the forum area - we are having attacks on the mainsite that we catch as soon as we can, but if you try to enter through the main site sometimes, if you have an anti-viral on your computer it may stop you occassionally. So bookmark this forum area and come directly through this way. I know other members have had trouble getting in, but we are on top of it and always check back soon -as we "usually" resolve the problem when it happens quickly. But like I said - enter through the forum, bypassing the main site.

Ok- here are some links of study for you:
CD57 Info: http://www.truthaboutlymedisease.com/ph ... ?f=10&t=10

Symptoms & Misdiagnoses: http://www.canlyme.com/patsymptoms.html

Co-infections: http://www.lymeinfo.net/coinfectionarticle.html

Unreliable testing - read both pages: http://www.ilads.org/basic.html

Lda: http://www.lymediseaseassociation.org

Treatment guidelines/supplements & more:
http://www.ilads.org/lyme_disease/B_gui ... _17_08.pdf

Many subjects, video etc. regarding TBD's (tick borne diseases): viewforum.php?f=10

Recommended reading: http://www.amazon.com/Cure-Inside-Epide ... 768&sr=8-1

How interesting they knew at webmd that this is a Christian Lyme Disease forum...cool!

6 (including me) have LD in my family. My brother in law just had his CD57 test come back yesterday at 19. You aren't alone.

Anyway we can help, just post, ok?

God bless,
Dana

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Join us on Facebook and connect with other Lyme patients: http://www.facebook.com/home.php?sk=gro ... 2524317756
Follow us on Twitter https://twitter.com/TruthaboutLD
Truth About Lyme Disease Home Page: http://www.truthaboutlymedisease.com
Truth About Lyme Disease Video : http://www.youtube.com/watch?v=ZGQINypsf7g

Always check w/your MD regarding advice given by me or any member at this forum & any articles & info. at this site. Site disclaimer: viewtopic.php?f=6&t=16


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 Post subject: Re: Does anyone know @CD57. Mine is 16 PLEASE HELP
PostPosted: Sat May 23, 2009 5:16 pm 
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I cannot thank you enough for your help. I am so truely sorry for your pain and suffering. God Bless you for helping me. I ask in the name of Jesus that YOU DANA and all FAMILY BE HEALED. Lord, I cry out you as our comforter and healer.YOU ARE I AM...YOU ARE JEHOVA RAFA. PLEASE HEAL THEM. IN JESUS NAME, AMEN

With all the work you do thank you for reaching out to someone in need. I have been crying out to the Lord because of pain and saddness. I will remember you as an angel.
JEN


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 Post subject: Re: Does anyone know @CD57. Mine is 16 PLEASE HELP
PostPosted: Sat May 23, 2009 5:49 pm 
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Hello and welcome sweetie.
I only have a minute, I'm about to be ill here, but wanted to welcome you to TALD and let you know I will give you a more formal intro tomorrow morning.

take a look thru the "everything you need to know about tick born diseases" if you go to the board index up top (the green house looking thing), takes you to the forums and that one is the third one down. Dana has worked so hard at putting together so many wonderful articles, thousands of hours of research.... great info there.

again, welcome and I will be replying more to all this in the morning :)
jaime

_________________
"something good WILL happen to me today"

(Isaiah 53:5 NKJV) But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, And by His stripes we are healed.


Any advice given by me, is just that, advice. I am not a medical doctor, and I suggest you talk to your doctor about any concerns.


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 Post subject: Re: Does anyone know @CD57. Mine is 16 PLEASE HELP
PostPosted: Sat May 23, 2009 6:24 pm 
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Welcome Jen!! :) :)

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"...I am the LORD who heals you." - Exodus 15:26


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 Post subject: Re: Does anyone know @CD57. Mine is 16 PLEASE HELP
PostPosted: Sat May 23, 2009 6:26 pm 
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Jen,
Thank you for your prayers..thank you for your kind words.

My prayers are with you as well, we are here for you - I am glad God led you here.
Dana

_________________
~~~~~~~~~~~~~~~~~~~~~~
Join us on Facebook and connect with other Lyme patients: http://www.facebook.com/home.php?sk=gro ... 2524317756
Follow us on Twitter https://twitter.com/TruthaboutLD
Truth About Lyme Disease Home Page: http://www.truthaboutlymedisease.com
Truth About Lyme Disease Video : http://www.youtube.com/watch?v=ZGQINypsf7g

Always check w/your MD regarding advice given by me or any member at this forum & any articles & info. at this site. Site disclaimer: viewtopic.php?f=6&t=16


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 Post subject: Re: Does anyone know @CD57. Mine is 16 PLEASE HELP
PostPosted: Sat May 23, 2009 8:22 pm 
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Joined: Fri May 22, 2009 6:22 pm
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Thank you all for such a warm welcome. I mean that with all my heart. He has used you all to encourage me.



Its been a sad day.
I know Jesus is carrying me :hug:

GODS BLESSINGS TO ALL OF YOU
jen


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 Post subject: Re: Does anyone know @CD57. Mine is 16 PLEASE HELP
PostPosted: Sun May 24, 2009 6:05 am 
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Jen,
I was wondering if you are seeing a lyme literate doctor? It's really necissary when dealing with this disease, the mainstream world of medicine does't seem to much understand or want to deal with it. if you send me a private message and let me know what state you're in I can help you to find one.

I"m so glad you have a relationship with God. I honestly don't know how I would have made it this far without Him in my life...and sadly my walk didn't truely start until a few years ago, when I got sicker than I had ever been. Thankfully Dana was there for me, and we've been inseperable since.

Not sure if you know about Joyce Meyer, but I'm totally hooked on her , she's a female minister on tv, she's so down to earth, real, even funny at times, you can watch past episodes online at www.joycemeyer.org she's gotte me thru a LOT of days! It always seems as though what she has to say is perfectly fitting to what I might be going thru that particular day. Of course considering the insaine amount of symptoms I experience, I guess it wouldn't be hard to hit upon on of them!

Many blessings
jaime

_________________
"something good WILL happen to me today"

(Isaiah 53:5 NKJV) But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, And by His stripes we are healed.


Any advice given by me, is just that, advice. I am not a medical doctor, and I suggest you talk to your doctor about any concerns.


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