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 Post subject: Now my LLMD appt. today
PostPosted: Wed Feb 20, 2008 2:12 pm 
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Well here it is, some we know.

Viruses are going down....I am to remain on Valtrex. He said, "You have a HUGE viral issue, but they are going down, takes years of Valtrex". CMV is present & high - only killed by Valcyte, but not ready for that drug - read too much about how toxic it is! Maybe at a later date.

Medications for Ld: LOW, LOW dose bicillin/Biaxin - he doesn't want me herxing hard, he wants me functional.

HLA test - shows genetic predisposition to mold...does NOT mean I have mold. We are going to have our house & CARS mold tested, simple with mold plates, you set them in places around the house, close them up and if mold spores grow, we might have an issue, depending on the type -PLEASE PLEASE PRAY this is NOT an issue!! This really scares me.

No yeast testing as I requested - this bums me out! He says the tests are not reliable! I don't know if I believe that entirely, other LLMD's test for yeast, urine, stool & blood. I cannot get a doctor to test me! So no diflucan, which I wanted. He said natural alternatives, oregano oil, garlic, etc. or NOW Candida Clear (which I have) can be used. I told him I herxed on it, he said then "stop if anything causes pain".

This is interesting and new road, I am use to heavy hard hitting death herxes....we will see how this goes for now.

I think 2 years of this agonizing pain, he knows my pain levels are through the roof, he doesn't like it, we know it is going to take time, time, time, so we are going easy for awhile.

I think that is it.

:pray: for me that this helps me to progress some,
Dana

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 Post subject: Re: Now my LLMD appt. today
PostPosted: Wed Feb 20, 2008 4:17 pm 
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Someone and I were joking around about (I think it was zee) ... how you know you're a Lymie if you talk about your "cycle" being the same and you're talking about your LLMD appointments instead of your menstrual cycle. (sorry Danny)

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The LORD is the everlasting God, the Creator of all the earth. He never grows weak or weary. No one can measure the depths of his understanding. He gives power to the weak and strength to the powerless. Even youths will become weak and tired, and young men will fall in exhaustion. But those who trust in the LORD will find new strength. They will soar high on wings like eagles. They will run and not grow weary. They will walk and not faint. Isaiah 40:28-31
http://www.jmgarnet76.blogspot.com


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 Post subject: Re: Now my LLMD appt. today
PostPosted: Thu Feb 21, 2008 12:53 am 
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Image

Sad, but true! We could talk more about Patrick! Image

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 Post subject: Re: Now my LLMD appt. today
PostPosted: Thu Feb 21, 2008 3:25 am 
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You should have inserted picture of patrick. then my morning would have been made. :D :nerdy:

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The LORD is the everlasting God, the Creator of all the earth. He never grows weak or weary. No one can measure the depths of his understanding. He gives power to the weak and strength to the powerless. Even youths will become weak and tired, and young men will fall in exhaustion. But those who trust in the LORD will find new strength. They will soar high on wings like eagles. They will run and not grow weary. They will walk and not faint. Isaiah 40:28-31
http://www.jmgarnet76.blogspot.com


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 Post subject: Re: Now my LLMD appt. today
PostPosted: Thu Feb 21, 2008 6:06 am 
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(((((((((Dana))))))))) I'm so bummed about the diflucan... so many doctors have even said anytime you take abx you should take diflucan. (he does understand you were talking systemic right?) but like we were talking, natural things can be so amazing, so don't doubt them at all.

I should just be your doctor, didn't I just say low low bicillin/biaxin? haha. come move to ohio...in fact you all can just move in here! could you imagine...haha. that would really send John thru thru the roof, all of us sickies. we could walk around threatening to touch him, haha. I know, inner peace, inner peace. ok, I'm there.

I think going slow, and then adding in some of the natural stuff we talked about is the way to go, I really do.

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"something good WILL happen to me today"

(Isaiah 53:5 NKJV) But He was wounded for our transgressions, He was bruised for our iniquities; The chastisement for our peace was upon Him, And by His stripes we are healed.


Any advice given by me, is just that, advice. I am not a medical doctor, and I suggest you talk to your doctor about any concerns.


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 Post subject: Re: Now my LLMD appt. today
PostPosted: Thu Feb 21, 2008 1:36 pm 
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Jennifer book mark this link: viewtopic.php?f=9&t=72 hee!hee!

Jaime - I am BLOWN away that he wouldn't prescribe diflucan! He normally is so fine with what I want! I have to go to his office April 3rd, I will see a different doctor in his office, he won't be there and I will push him for it! For 2 years, LLMD's and mainstream Md's won't test me and won't prescribe diflucan. Yes, I think it was Schaller who said if on abx you need diflucan...even Buhner said diflucan cured many neuro patients!! Dr. B loves Buhner, I quoted him and I made sure he understood "systemic" still nothing.....

Oh geez.....now I can only wait to see this other LLMD in his office or I could go to Dr. H, I know he tests for yeast/candida ...but both LLMD's I have seen won't!

I don't get it! It reminds me so much of the viral "fight" for MONTHS I insisted on testing, until I wore them out. Dr. B was astounded at how high my titers were when he got my first test results back, he said and I quote, "I have never seen viral titers this high in my 25 years of being doctor!" I had a gut instinct...now I fight for this!

Yes, you were right ...he said I can do either low dose Doxy or low dose bicillin, he prefers bicillin. So bicillin it is, starting today....THAT NEEDLE!!!!!!!!!!!!!! Can't wait.

I might as well go ahead and post my normal "I CAN'T TAKE THIS ANYMORE" right now.

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Join us on Facebook and connect with other Lyme patients: http://www.facebook.com/home.php?sk=gro ... 2524317756
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Truth About Lyme Disease Video : http://www.youtube.com/watch?v=ZGQINypsf7g

Always check w/your MD regarding advice given by me or any member at this forum & any articles & info. at this site. Site disclaimer: viewtopic.php?f=6&t=16


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 Post subject: Re: Now my LLMD appt. today
PostPosted: Thu Feb 21, 2008 2:08 pm 
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OK, I'm surrounded by two versions of 2007 PDR and a Drug Information Handbook (handy to work supporting a College of Pharmacy) and I can't find Diflucan anywhere. Is that Nystatin? Laine has taken Nystatin from the start and I have like a quart of it. Dr. C says never stop taking it while on antibiotics. He didn't even test her, just assumed she had or will have a yeast infection in her colon while doing abx.

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 Post subject: Re: Now my LLMD appt. today
PostPosted: Thu Feb 21, 2008 2:31 pm 
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My dr. gives me 200 mg Diflucan per day and I don't test high for yeast. He knows it treats Lyme is some way, too. I take one red pill of Nystatin. He only gives my sister 100mg and she HAS yeast, although she is on way more Nystatin.

Do you get sugar cravings, Dana? That is my sister's number one symptom. She also gets sicker if she eats sugar but so do I (just not quite as sensitive to sugar as she is).

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