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 Post subject: Molly's Story
PostPosted: Mon Feb 18, 2008 10:54 pm 
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Joined: Sun Feb 17, 2008 9:42 pm
Posts: 2809
Location: USA
I don't know where to start as I'm not sure when I got Lyme, but now that my twin has been diagnosed and my spouse and daughter have no symptoms I think I got infected as a child or teenager in the 60's or 70's. My twin and I have always been "sickly" We missed a lot of school and more work than the average person.

I finished college and worked for 25 years in a very stressful field (the Mortgage Business). My last job of 12 years was in Mortgage Sales. Fortunately the past eight of those years I "shared" the job with my husband which eliminated much of the stress but on "paper" I was the employee so I had to do the traveling, etc (which always cost me a week in bed)

About five years ago I started to get sick every few weeks. I would spend up to five days in bed sleeping up to 18 - 20 hours per day. As time went on I would get sick more frequently (mostly flu like symptoms, headache, general body aches). If I went on a vacation or a business trip I would get ill afterwards.

About three years ago I was diagnosed with Fibromyalgia by my GP. I was told there was no treatment and that I needed to learn to manage the sickness (do research, etc) and to do mild exercise.

Then in the spring of 2005 I got a three month yeast infection that ultimately led to a very painful condition called Vulvodynia (which means unexplained pain in the Vulva). I concentrated on treating that for nine months as it was extremely painful - as the day progressed the pain would worsen until I could not sit down. Kneeling in my office was uncomfortalbe as my knees would get sore and I developed other pains from not sitting properly due to the pain. I would go to be by 7:00 p.m and had only one position that I could tolerate. I went to one of the leading Vulvar Pain specialists in the U.S. and she wasn't able to lessen my pain (put me on Nuerontin which didn't work)

Then in late 2005/early 2006 I decided that my problem was not just Vulvar Pain but it must be a "whole body" issue. I found The Fibromyalgia and Fatigue Center, went to one of their seminars and started treatment. They took 19 vials of blood at my first visit and ran many tests. I was found to have many "stealth" infections, both viral and bacterial and was positive on band 41 for Lyme (on a Quest!). They did a Western Blot from Igenex and initially the FFC Dr. said I was negative for Lyme but had another "flagella" that she would treat. I got a copy of the test and saw that I was positive and challenged her diagnosis. She had to call the head doctor at the FFC to verify my positive result.

I stayed at The FFC for aboout four months (vulvar pain improved significantly with the Doxy and Alkaline Diet) but left when I realized I knew more about Lyme than the Dr.

I have been with my current LLMD since June and he is super. I did have a couple of setbacks - Esophogus issues with Doxy and Zithro/Amantadine for two months that was ineffective. Then in the fall of 2006 issues at work caused extreme stress (even though I was only working a few hours per week) and my condition worsened. The Doxy also became ineffecitve.

I quit my job last month and I'm on a new ABX regiman and I'm on my way to healing again. I take my meds/supplements every day, keep my diet as alkaline as possible, get as much rest as my body wants (two hour nap per day) and avoid stress or just don't let things bother me.

My husband officially took my job so when I am healed we plan on working together again.

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